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FINANCIAL TIMES. 26.5.21 - NHS Plans To Share Our Patient Records with 3rd Parties

Tom Chakraborti made an incorrect response to my earlier post. I am not wanting to waste anyone's time - least of all my own - with any forum wrangle. Only trying to alert people who don't want their GP medical files to be shared without their permission to Opt Out before 23rd June.See FINANCIAL TIMES piece of 26.5.21 below: https://www.ft.com/content/9fee812f-6975-49ce-915c-aeb25d3dd748 England’s NHS plans to share patient records with third parties. May 26th 202155m patients have until June 23 to opt out of having their health data scraped into a new database. The NHS will make every patient record in England available to academic and commercial third parties for research and planning purposes.England’s NHS is preparing to scrape the medical histories of 55m patients, including sensitive information on mental health and sexual health, criminal records and abuse, into a database it will share with third parties. The data collection project, which is the first of its kind, has caused an uproar among privacy campaigners, who say it is “legally problematic”, especially as patients only have a few weeks to opt out of the plan. NHS Digital, which runs the health service’s IT systems, confirmed the plan to pool together medical records from every patient in England who is registered with a GP clinic into a single lake that will be available to academic and commercial third parties for research and planning purposes. Cori Crider, co-founder of Foxglove, a campaign group for digital rights, said: “We all want to see the NHS come out of the pandemic stronger” but noted that the NHS had been “completely silent” on who would have access to the data. “Is it pharma companies? The health arm of Google Deepmind? If you ask patients whether they want details of their mental health, fertility treatment or abortion, or results of their colonoscopy shared with [those companies], they’re not going to want that,” she said. Foxglove has issued a legal letter to the Department of Health and Social Care, questioning the lawfulness of the plans under current data protection laws, and threatening further legal action. Rosa Curling, a solicitor at Foxglove, wrote in the letter that she had “serious concerns” about the legality of the move because no explicit consent had been given and “very few members of the public will be aware that the new processing is imminent, directly affecting their personal medical data”. NEED TO OPT OUT BY JUNE 23Patients have until June 23 to opt out by filling in a form and taking it to their GP before their historical records will become a permanent and irreversible part of the new data set. Patients who opt out after the deadline can only stop future data from being funnelled into the new system. The plan to create a new data set was announced by Matt Hancock, health secretary, in early April and publicised mainly on blogs on the NHS Digital website, and through flyers at GP surgeries, said NHS Digital, which added that the plans had been in the works for three years. But Phil Booth, founder of advocacy group MedConfidential, said: “They’re trying to sneak it out, they are giving you six weeks nominally and if you do not act based on web pages on the NHS digital site and some YouTube videos and a few tweets, your entire GP history could have been scraped, never to be deleted.” He added that the NHS had “opaque” commercial relationships, often through middlemen, and that it would be difficult to trace who ultimately sees the data. NHS Digital says on its website that it publishes a monthly register of who it has released data to, and whether the data is anonymised or not. Data that directly identifies patients will be replaced with unique codes in the new data set, but the NHS will hold the keys to unlock the codes “in certain circumstances, and where there is a valid legal reason”, according to its website. NHS Digital said the Information Commissioner’s Office, the UK’s data regulator, had not objected to its plans, and that it was in the process of delivering a data protection impact assessment. The plan comes following an attempt in 2013 to extract GP records into a central database, called the Care.data programme, which was abandoned in 2016 after complaints about confidentiality and commercial use.

Rae Lewis ● 1977d6 Comments ● 1977d

Conservatives need strong pro-cycling measures

Below is an interesting article from ConservativeHome making the case that people like Tom Pike have been making for the economic, health and political imperative for Conservatives to support active travel and traffic restriction schemes in cities like London. One for our younger more open-minded local Councillors perhaps. And the LibDems in Southfield of course.This quote sums it up for those who don't want to take the time to read the whole article: "a core right-wing value is giving people the liberty to make their own choices in life. Right now the vast majority of road space is monopolised by one mode of transport – cars. We must ensure everyone has the option of a cheap, safe and efficient alternative method of travel."https://www.conservativehome.com/platform/2021/05/jordan-redshaw-our-party-needs-a-strong-pro-cycling-measures-to-rebuild-in-cities.htmlJordan Redshaw is on the Conservative Friends of Cycling’s Executive Committee.It is not controversial to say that since the beginning of the pandemic there have been some things the Government has got right and some areas where it should have done better.An often overlooked area in which this Government has achieved outstanding success is in its promotion of cycling. There simply have been no previous governments with such a bold vision. Their proposals are described in the “Gear Change” report: an ambitious plan to get Britain cycling that has been received very positively.To back up these proposals, the Government has committed to spending £2 billion on cycling and walking over the course of a parliament. They have already published much needed higher standards for safer cycling infrastructure (LTN 1/20). They are helping people get back on their old bicycles with 500,000 repair vouchers worth £50 up for grabs and there are plans to introduce a modern day Cycling Proficiency scheme for people of all ages.However despite strong actions to promote safe cycling, on the doorstep, the Conservative Party is still seen to have a weaker stance on cycling than its opponents. As a party there is a lot for us to gain by promoting cycling and therefore cementing our rightful position as the party helping people cycle more and with safety.During the recent local election campaign, we saw many Labour led councils take credit for implementing safe cycling infrastructure using the government’s Active Travel Fund. This £250 million fund has allowed local authorities to bid for grants to improve cycling infrastructure in the midst of the pandemic. This was a missed opportunity for many Conservative-led councils who have not taken advantage of the Active Travel Fund and delivered safe cycling infrastructure to their voters.We need to trust the Government in its promotion of cycling – after all Boris has a successful record here having implemented the gold-standard of segregated cycle lanes, the “Cycle Superhighways” as Mayor of London. London’s cycle hire scheme is still popularly known as the “Boris bike” scheme by Londoners and tourists alike.The Prime Minister’s strong cycling credentials helped him win a second term in a city usually dominated by Labour. Shaun Bailey was generally perceived to have poor intentions for cycling and ended up finishing ten per cent behind Sadiq Khan in the final round. It is not good enough for Conservatives to give up on London, when we know we can win in London with a positive, pro-cycling manifesto.After all, we recently saw Andy Street and Ben Houchen achieve similar success with pro-cycling policies. Street wrote here at ConservativeHome about his ambitions to build 500 miles of cycle lanes in the West Midlands, and Houchen invested £18 million for active travel improvements in the Tees Valley. Conservative councillors across the country could learn a lot from this and achieve similar success by also delivering high-quality cycle infrastructure.A core right-wing value is giving people the liberty to make their own choices in life. Right now the vast majority of road space is monopolised by one mode of transport – cars. We must ensure everyone has the option of a cheap, safe and efficient alternative method of travel. It is a wonderful thing that anyone can get set up with a bicycle for less than £200 and in many urban areas it is the quickest and most reliable way to get from A to B.Let us not forget that many cyclists also own cars. The AA recently found a third of drivers have said they will cycle, walk or run more after lockdown. Many of these people won’t cycle for political reasons or even for the environment, they simply want the choice to get around cheaply, safely and quickly.It is vital that communities are properly consulted when introducing safe cycling infrastructure and Low Traffic Neighbourhoods (LTNs). All too often last year, Labour councils introduced temporary cycle lanes and LTNs overnight with minimal or no consultation. There has to be decent consultation with local residents to ensure schemes are implemented in the best possible way by considering everyone’s needs.However, we must not fall into the trap of listening to the loudest voices in our party – or perpetuated myths on Twitter – as reasons for scrapping or never implementing these schemes. Imperial College London found no evidence that cycle superhighways worsened traffic congestion in London. In Kensington and Chelsea, independent polling found just 30 per cent of those surveyed were against the Kensington High Street cycle lane. This is not an isolated case as surveys have consistently found that the majority of residents support LTNs too – perhaps unsurprisingly, as who wouldn’t favour traffic moving from residential streets to main roads?Polling in March this year shows just 16 per centof people oppose LTNs, whereas 47 per cent support them in London. Supporting cycle schemes is a vote-winning policy and for Conservatives to remain relevant in cities and amongst future generations we must embrace many Briton’s desires to cycle safely. During the pandemic one of the reasons we fared badly, as a country, is because of our obesity crisis. According to the OECD, 63 per cent of UK adults are overweight, meaning the UK is the most overweight country in western Europe. The costs of physical inactivity to the UK are estimated to be in excess of £7 billion every year.There are clear economic benefits both for individuals and wider society in improving the nation’s health. Regular cycling can reduce the risk of dementia, Type 2 diabetes, some cancers, depression, heart disease and other common serious conditions by at least 30 per cent. Cycling England’s Qualitative Survey on Cycling found in their Benefit Cost Ratio (BCR) analysis, for each £1 invested in cycling the value of decreased mortality was £2.59.This is only taking into account the benefits of reduced mortality, the overall BCR ratio of cycling investment is much higher at 13:1. Whereas motorways often only have BCR’s of 3:1.Other economic benefits should not be underestimated. Cyclists visit local shops, restaurants and cafes more than users of other modes of transport spending up to 40 per cent more than drivers according to TfL. This higher footfall will help our high streets at a crucial time.Supporting safe cycling is only going to become more important as we work towards carbon net zero by 2050 – it is not a fad that is going to disappear after the pandemic passes. If we continue to build on the Government’s success at a local level we can ensure this is a golden era for cycling. As a country we will reap huge economic, environmental and health benefits, and as a result the party we will reap the rewards at the ballot box

Paul Campbell ● 1981d76 Comments ● 1979d