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There used to be the Liverpool Care Pathway which was in many cases not used in the way in which it was intended with many patients being distressed through thirst.  This had a lot of bad press (there is plenty on the internet) and was moved on from.  Patients were also being put on this without any consultation with family who were visiting and asking about the welfare of their loved one.  We do not prepare ourselves enough for old age or disability  and how we would live in our homes should something happen to us - what adjustments and changes we would need to make - or discuss it with our nearest and dearest.  Great ideas about building homes for life and even just the accessibility of public buildings and transport seems too often to have failed following reports, recommendations and laws.The frustration of someone who has had a stroke and cannot communicate is devastating and you will have to learn to asked what are closed questions which if you yourself are in  shock is made harder.I thought that our GPs at one time had been tasked with asking us whether we wanted Do Not Resuscitate written on our notes - that is certainly better than a person with a clipboard meeting you with the question as you enter the hospital.You will also have to consider whether or what funds you have for ongoing care because it can be a real fight to get any even if you think you are eligible and there is a lack of care staff.  The small Carers Allowance also stops when you retire so you had better have a good pension. We've all got to go sometime.

Philippa Bond ● 99d

Alan D. Miller is protesting about the attempt to end the life of an elderly woman at University College Hospital London;KateShemirani  posted on TWITTEREnd Of Life Protocol... Posted by:Anna Kirkpatrick.I hope that between the three posters involved in this subject have their facts absolutely correct.My own experience of end of life care is so much different to the one posted on the this forum.Yes mistakes are made and sometimes protocol isn't strictly adhered to.Allegedly, at some hospitals where an elderly patient is admitted with a serous life threatening condition, the consultant in charge will add a DNA or DNACPR without much consultation with the relatives involved if they have any.The medical staff base their decision on if CPR will do more harm than good.  That's why older people should take out a Lasting Power of Attorney if they have any serving relatives, this means they can intervene and discuss with the medical staff the best way forward, in other words, looking after the patient's interest.  But if you haven't got any relatives or friends to take up this role, then you are in the hands of the medical profession.End of life care can be carried out in hospital, but by the appropriate medical staff who are trained to Carry out the appropriate  procedures. There primary goal is to make sure the patent is as comfortable as possible.and as pain free as possible. They are kept clean and washed daily, the patient may refuse to take their drugs that have been prescribe for them in the past, the staff just don't give them, as it would mean forcing them to take them which, distresses the patient even more. later the patient may refuse to eat but drink instead, then in the later stages everything is refused by the patient and they are kept as comfortable and pain free to the end.Its a similar process at home as well, being attended to by carers and end of life trained medical staff every day to the end.Well that's how its meant to be done

Bernard Allen ● 106d